Tuesday, June 25, 2019

I’m lost in the disorientation of summer time. The sun had been high and bright all day until I slipped under my covers to take a nap, and then the sun, too, slipped under its covers and out came a disorienting afternoon thunderstorm. The sun and I are both up and at ‘em once more, but time seems off-kilter. I move, often motivated by a checklist and a strong sense of duty, but in my shapeless afternoon the checklist seems insignificant. The hours slip by unnoticed, a book in my hand, sounds of music and typing coming from my husband’s office down the hall. My daughter, with her allowed once hour of television per day, has somehow expanded the hour and I can’t muster up concern. She’s two flights below me, engrossed in Star Trek Voyager and I don’t mind. Ah, lazy summer days. My body and brain are receiving a rest that was unasked for but embraced nonetheless.

The rest of today follows the pattern I’ve been feeling in the past several months, and I’ve described it as a lull in life, a “selah” from the Psalms if you will. I’m not sure that the word selah is completely understood, but some think it means to pause or to take a break. Like a little breath, if it’s truly a musical notation. I feel like I’m in a stage of life that is a little uptake of breath, a bit of calm, a period of pausing.

What happens when a duty-bound, responsible, checklist-making woman takes a breath?

I don’t know exactly, but here I am.

Will the world fall apart?
Will I miss out on opportunities?
Will I forget something or, and this is far worse, will someone forget me?
Will I be seen as lazy?
Will I forget to be goal-oriented?
Will I be more content?

Yes. I can answer that last one already. This selah is surrounded by space that breathes of contentedness. I have strived for decades to reach particular goals, and I’ve largely been good at it. So what happens if I’m not immediately in pursuit of something? Can I truly sit here and read a book and then get takeout for dinner and the world will keep spinning on its axis?

Yes to that question, too.

I don’t know how long this break will be, this space of breathing in and out and not always achieving. I don’t know its length but I do know it’s content. Right now it’s making dinner without feeling the pressure of an activity coming right after it. It’s hanging out with my animal-loving kid, carting her from pet-sitting to the zoo and back again. It’s talking with her, and talking with my husband, and watching tv shows together, again without any pressure of significant deadlines. It’s reading a book, finishing it, and picking up another one. It’s reading out loud. It’s listening to podcasts. It’s conversations with friends or family over an iced coffee or a last-minute run to Marshalls.

So for now I march to a different drumbeat that doesn’t feel like a beat at all. Bring on the summer sun, and let the days come.

Counting Practice

The one cashier available at Walmart this morning was busy with two customers, so even though my cart was full to the brim, I walked down to the self-serve lanes. Preferring to be busy rather than standing still waiting, I pulled out my reusable totes and starting scanning. (Not gonna lie, I love to scan stuff.) As everyone knows, the Walmart self-scanners and bagging stations are finicky and don’t appreciate the variables of extra weight from bags I have brought from home. It was a long process to get checked out. I went through two workers who periodically came over to scan their employee cards and tell the machine to chill out. I felt a tweak in my lower back from bending over for heavy groceries and heavier bags (now waiting on the floor to not confuse any machine or person).

However, what I felt in that moment was immense gratitude.

The small tweak in my lower back reminded me of the bigger tweaks that I was not feeling. At all.

The balls of my feet—suited up in tennis shoes—felt absolutely fine.

My elbows—whose joint tissue has been eaten up by rheumatoid arthritis and then surgically removed at Mayo—felt absolutely fine.

My blood sugars—with an assist from a protein-rich, carb-free breakfast—were absolutely steady.

Though I had walked into Walmart under dark clouds, I walked out into sunshine, my hand digging into my purse for sunglasses. I thought about the nature of life and how terribly hard things can be. Sometimes the hard things obscure our views. Sometimes the hard things are so intense that we can’t come up for air, we can’t see anything else but pain, we can’t catch our breath. But to be honest, those moments of intensity are not the norm—and thank goodness they aren’t. Usually life is a little more balanced and that is exactly when it’s important to recall the way we are blessed. And like I’ve said before, we can see those blessings all the more when we’ve experienced a little darkness to compare them to.

I would not have taken a moment to appreciate my strong feet and strong arms on the concrete floors of a warehouse grocery store if I had never experienced the utter debilitating nature of arthritis. Am I asking too much for others to be aware of their own strong joints when they’ve never been through what I have?

Our experiences are not the same. It is likely that you’ve experienced hardships I’ve never had to consider. It is also likely that, if we were to get into conversation, we’ve had similar struggles at one point or another in our lives. Suffering doesn’t belong to just one or two people—it’s widespread. It’s human. It’s part of being human.

What helps us to count the blessings is a healthy dose of empathy. If you can see someone else’s plight—and if you can imagine just for a second that it’s yours—you will value the sweetness of life all the more.

The infertile woman or man is looking at you guys, yes, all of you with all of your biological children, as absolute miracles.
The teenager with cystic fibrosis is envying your ability to pull in deep breaths of air.
The diabetic who is trying to avoid sweets but also has to buy extra Skittles and juice boxes for low blood sugars is marveling at your pancreas.
The kid going through a divorce looks longingly at two-parent homes, while the kid without a father wonders what having a dad might be like.
The guy without hands sees how fast you put on a tie, change a tire, hang a picture frame, or type an email and feels a bit tired.
The woman who is plagued by anxiety and doesn’t sleep wonders when this feeling will end and life will resume normally.
The student with gut issues wishes he could eat anything he wanted to and would rather not take drugs to get by.
The cancer patient thinks about her longevity and is amazed there used to be a day where cancer wasn’t a constant companion.

Can it be that simple? Can your ability to take a deep breath be something you’re actually grateful for? When you lace up your sneakers and go for a hard run, can you appreciate the movement of your muscles and joints? If you aren’t a diabetic can you rejoice that you can sweat without considering your blood sugars? If you have eyes to see the sunshine and the clouds, can you count that as a blessing? If you can hear the robins chirping and the kids playing outside yelling and the dogs in the neighborhood barking, can you rejoice that winter is finally over and be happy that being outdoors is an option again?

This is life. This is the way to live, friends. If being human is experiencing hardships AND joys, then open your eyes to the joys you still have the ability to count. And when the darkness is all-consuming, ask a friend to who can still see light to recount the joys for you.

I Want to be a Helicopter Mom

I once worked alongside a woman who was tough. In an office building full of warm and empathetic individuals, she stood out as a person who wasn’t interested in chitchat, didn’t smile very often, and certainly didn’t seem to care if you were the latest student-worker in a long line of uninteresting student workers. She was not, shall we say, nurturing whatsoever and her reputation preceded her.

I was nervous every single time I had to approach her desk and ask her a question. As a person who excelled in the “getting people to like me” category (I could say a few thing about my idolization of likability now), I wasn’t used to interacting with personalities like this one. After I got over my initial surprise at her lack of warmth, I decided something: I was going to work hard to win her over. Putting my own feelings aside was not the norm for me—and still isn’t—but I recognized something in my early 20’s and it was that I was going to have to work on this relationship over time. There was an obstacle—her—and there was a hurdle to get over, and I was determined to conquer this challenge.

In conquering the challenge, I learned a huge lesson in relating to people. Not everyone is a warm fuzzy person! Some people have tough exteriors borne of hard circumstances and others have natural bends towards introversion. Whatever the reason, people are people and will behave differently and that has nothing to do with their motivations, interests, and, hopefully, my relationship with them. This woman became a friend to me during my years of working in this environment, and she is still my best example of powering through what initially felt like a hard situation. I have fond memories of her now.

I confess that I don’t want for my daughter to go through hard times. I want to bubble wrap her, ensuring she has a soft heart towards the world and protecting her from the cruelty I’ve seen. I want to wrap my kindness around her to deflect the unkind words that come in her direction. I want to lay pillows at her feet to protect her from inevitable falls. I want to open her eyes to rainbows and flowers and sunsets without her having to witness the heavy winds and tornados and, yes, the floods. At some level I understand Helicopter Moms. The desire to protect and want the very best for our progeny is strong. With privilege, power, and influence, some of us will stop at nothing to push our children into the future that we think is best, along the route that we think is best, and you better believe we’re going to deflect those hard times we see coming a mile away.

But oh, that’s not the way to go. Not at all.

Even while I was typing about sunshine versus storms, I couldn’t help but notice that sunshine means little unless you’ve been through the longest winter on record and you lost track of warmth and light and were moved to a hopeless place in your heart. Isn’t spring all the more sweet after a hard winter? Each bud on the tree now sings praise to its Maker, and your heart is moved to do the same. Spring isn’t nearly as interesting without the hard crust of snow and layers of salt and the same winter boots pulled on day after day. It is this contrast of lovely versus unlovely that awakens us to the blessings we have.

Our pastor said something in a sermon months ago about hoping that his kids will suffer. Okay okay, it’s so out-of-context here that it’s not fair, and yet, suffering is absolutely part of this human experience. I can tell quite quickly whether a fellow adult has ever suffered based on their compassion and empathy for another suffering human. We don’t mature without have the hard edges rounded off, and oftentimes that rounding happens in the toughest of moments. Every scrape of a knee and fall from a tree leads to a child figuring out her boundaries. The mistakes made in adolescence lead to knowing one’s limits. The stupidity of early adulthood leads to important life lessons.

I can’t be a Helicopter Mom any more than I can sprout wings and fly south when the first snows begin to fly. While everything within me yearns to protect my growing child, I do not believe she is best served by being bubble wrapped and protected from the difficulties of this world. If I remove her from every hard situation—which I physically cannot do—how will she learn her limits? How will she rebound and be bolstered internally when the external world is hard to understand? How will she learn rely on God, who is always present and available to her?

Many kids I know have already been through a lot by the time they hit middle school. I think of those who’ve been adopted—whether in infancy or in later years—and I know they’ve experienced a level of trauma completely unknown by those of us who have been raised by our biological parents. I think of the children I’ve spent time with through the foster care system, and though others may never know of their struggles, I know of the addictions, the lack of parental consistency, the unsafe dwelling places, the abuse and the near-constant neglect may of them have faced by the time they started kindergarten. And kids who aren’t in foster or adoptive homes? Still, life can get hard. The death of a parent, divorce, remarriage, sexual molestation, cross-country moves, bullying at school and home, unkind teachers and coaches, and financial difficulties can all shake up a person from the outside, while from the inside there’s a variety of developmental delays, physical disabilities, and mental illnesses that plague children.

However, the human heart is amazingly resilient. I saw this in the eyes of my students during my student-teaching days and I see it now in my child and in her friends and in my friends’ children. Despite hard things, the human spirit wants to succeed, and it doesn’t want to succeed because a Helicopter Mom removed all difficulties. No! We overcome the difficulties. We make changes. We rebound with encouraging words and encouraging examples and we don’t take for granted the people around us that offer a “You struggle with that? ME TOO!”

So on days (weeks, months, years!) when I feel like protecting my kid, I’ll try to reflect on how much stronger she’s grown in every area that matters in these past 14 years of life. I see her grow in smarts, in empathy, in artistic skills, in relating to animals, and in her faith in a God she can’t see but Who exists and is true and good. I will try to look back at those adorable baby pictures and crazy toddler antics and reflect on the joy she’s brought me and so many others in her world. Perhaps the hardships of this life serve as grit to clean the dirt off of the windows of our souls. May it allow the lights within each of us to shine brighter and brighter as we grow.

Dependence

I wake up in the night and the back of my left arm is irritated. Taped down against my skin is a small filament that measures the sugar in my interstitial fluid. This device is a medical marvel but at 2:30am the desire to rip it out is strong. I do it, knowing that within the next day I must recharge the transmitter and move the site anyhow. Lights bright in my bathroom, I pull out alcohol from the cabinet and lightly clean the slightly inflamed CGM site wondering how many spots like this will dot my body by the time the next tech comes out. Scar dots all over.

I’m up before the fam. Everyday I’m up before them, and now I contemplate where the next CGM site will be, rotating mentally from arm to arm to stomach (no), boob (giant no), and thighs. The company that manufactures my supplies doesn’t approve of the thigh, but it offers a lot of real estate. I also have to use this area for my once-a-month two-syringe stabbing for rheumatoid arthritis so, mindful of that unfun task, I swab with alcohol again, load up the sensor into a device, and click the button against my leg. I feel nothing.

I’m oddly proud of this process. The positioning, the taping, the looking for a green light, the applying of more tape. It was so hard to do at first that I would sweatily stand over a manual, flipping pages and breathing heavily before making the next move. As with any repetitious action, it got easier over time and today I only misplaced one piece of tape. I can now problem solve most issues on my own. And that I did this morning as my pump didn’t recognize the transmitter for awhile. I faithfully read users’ experiences with this system however. I troll a Facebook page daily, reading up on problems and solutions, and their wisdom (and folly) has kept me afloat. There’s an 800 number, a trainer’s phone number, an endocrinologist’s office also on standby, but I’d rather not call any of them if I can work it out. Today I succeed. Each success is like a little firework saying “I got this.”

I’m glad for those small fireworks because there’s so much I absolutely don’t got. For instance, the deeper I embrace medical technology equals my complete dependence on the company that sells me the parts. I play a game in my head where I whittle down my needs to the bare minimum. I could get by with insulin and a syringe and a glucometer. That’s the minimum. I’m far beyond that at the moment however; there are a lot of moving parts to my new bionic self. To get those parts, I must have great insurance and I must be involved in a lot of plastic and cardboard packaging. Why do I value independence so much? Why does it bother me that I rely so heavily on this one company and how they function? I think deep within my psyche I’m a survivalist, always looking to move freely and without damaging the land. Ha! It’s time to let that fantasy go, girl. I’m the opposite of a survivalist. In all those apocalyptic tv shows and movies? I’d just say “nah” and take off the blindfold or go hug a zombie or whatever. Type 1’s, even hopeful ones, are realists.

So now there’s a sensor and its accompanying transmitter taped down on my thigh. It’s Day One of the sensor—good for a week officially (and more than that unofficially if you’re savvy). Day One is nuts between transmitter re-charging time, a two-hour warm up time, multiple calibrations, and blood sugar checks. Reminder to self: turn off the pump’s audio during church. Last week I got a few nice alarms during prayer that I didn’t appreciate. I am grateful times a thousand for this technology, but I’m still coming to terms with it. I’m different because of it. I have a dedicated section of my brain to problem-solving all those alarms, and it’s intimately connected to the brain parts dedicated to the rest of diabetes. Basically, I have a mere 10% of my brain for the rest of life. So far so good. Despite all the challenges, every night as I sleep this new system charts something incredible on the screen of my pump: a flat line. We T1s joke that it’s the only medical flat line anyone actually wants to see. I sleep and my glucose sits between 100 and 120 all night long.

That never happened before.

This little system, so obnoxious with it’s alarms and unexpected moments of troubleshooting lets me fall asleep without being afraid of dropping into a low blood sugar and never waking up. I never even knew I was holding my breath with that fear until I used the pump to its fullest capacity at the start of December. Two months in and I am still marveling.

I’m dependent on insulin.
I’m dependent on my pump company.
I carry a bag everywhere I go.
And multiple sources of sugar are always nearby.
I don’t leave meals to chance.
I need to know how much exercise is involved in everything I do.

And yet, here I am. Dependently alive. Alive and happy to be so. Thank you, God.

What I Read in 2018

I tend to be quiet about what I’m reading, but this year I’ve benefitted so greatly from those who share their booklists OUT LOUD that I want to do the same. Plus, I can’t tell you how many years I’ve set a goal for book-reading via Goodreads and haven’t met that goal—it’s been a battle against my inner perfectionist for sure. However, in 2018 I read like crazy. I attribute this to kickstarting my reading habit in grad school and then taking an actual break from grad school where I had more margin to sit and dream and read for fun. I like reading. Final note: I read all kinds of stuff. There are few genres I’m not willing to explore, though, as you will see, I mainly read fiction. I’m listing title, author, and stars given with five stars being the highest ranking, and I am by no means fair in my attribution of stars. Read for yourself and decide if you agree with my standards, which 100% of the time is settled by how I feel upon completing a book.

JANUARY
Sleeping Giants – Sylvain Neuvel ****
Love, Loss, and What We Ate: A Memoir – Padma Lakshmi ***
Wool (Silo series #1) – Hugh Howey ****
The Girl on the Train – Paula Hawkins **

FEBRUARY
The Memory of Running Ron McLarty ****
Lost in the Middle – Paul David Tripp *****
The Ship of Brides – Jojo Moyes ****
The Nest – Cynthia D’Aprix Sweeney ***
Scrappy Little Nobody – Anna Kendrick **

MARCH
The Versions of Us – Laura Barnett ****
Camino Island – John Grisham ****
Everything Happens for a Reason – Kate Bowler *****
The Golem and the Jinni – Helene Wecker ****
The Summer Before the War – Helen Simonson *****

APRIL
Raising the Barre – Lauren Kessler ***
James Herriot’s Animal Stories – James Herriot ****
A Good Cry: What We Learn from Tears and Laughter – Nikki Giovanni ****
Shift (Silo series #2) – Hugh Howey ****
Mr Penumbra’s 24-Hour Bookstore – Robin Sloan ***

MAY
An American Marriage – Tayari Jones ****
The Rooster Bar – John Grisham ****
The Sacred Enneagram – Christopher Heuertz *****
The Myth of the Nice Girl: Achieving a Career You Love Without Becoming a Person You Hate – Fran Hauser *****

JUNE
Children of Blood and Bone – Tomi Adeyemi ****
The Immortalists – Chloe Benjamin ****
Tales of a Female Nomad – Rita Golden Gelman ****
The Summer House – Hannah McKinnon ***
Surprised By Hope: Rethinking Heaven, the Resurrection, and the Mission of the Church – NT Wright *****

JULY
The Patron Saint of Liars – Ann Patchett ****
Text Me When You Get Home: The Evolution and Triumph of Modern Female Friendship – Kayleen Schaeffer ***

AUGUST
Kitchens of the Great Midwest – J Ryan Stradal ****
Union with Christ: The Way to Know and Enjoy God – Rankin Wilbourne ****
Love May Fail – Matthew Quick ***
The Kind Worth Killing – Peter Swanson ****
North – Scott Jurek ****
Every Note Played – Lisa Genova ****
Little Fires Everywhere – Celeste Ng ****
Educated – Tara Westover **

SEPTEMBER
Identify Theft: Reclaiming the Truth of Our Identity in Christ – Melissa Kruger ****
Girl Waits with Gun (Kopp Sisters #1) – Amy Stewart ****
Gay Girl, Good God – Jackie Hill Perry ****
Lady Cop Makes Trouble (Kopp Sisters #2) – Amy Stewart ****
Miss Kopp’s Midnight Confessions (Kopp Sisters #3) – Amy Stewart ****

OCTOBER
The Ambassador’s Wife – Jennifer Steil ****
Philippians: At His Feet Studies – Hope Blanton, Chris Gordon *****
A New Model – Ashley Graham ***
The Natty Professor – Tim Gunn ***
Good Morning, Midnight – Lily Brooks-Dalton ****

NOVEMBER
Miss Kopp Just Won’t Quit (Kopp Sisters #4) – Amy Stewart ****
Us Against You – Fredrik Backman ***
Love and Ruin – Paula McLain ****
A Place for Us – Fatima Farheen Mirza *****
Lilac Girls – Martha Hall Kelly ****

DECEMBER
So Close to Being the Sh*t – Retta **
Bright Kids Who Can’t Keep Up – Ellen Braaten *****
Island of the Mad (Mary Russell #15) – Laurie R King ****
To Shake the Sleeping Self – Jedidiah Jenkins ****
My Antonia – Willa Cather *****

December 25

December 24

December 23

I love these people! This is us getting a bit giggly at the end of our [miniscule] photo shoot. Now that I’ve got my tripod game figured out there’s no excuse not to have something to frame for the grandmas! Here’s one of the extras from our brief foray out in the Nebraska wind two days before Christmas.

December 22

Rebecca has been coming over to help me wrap Christmas presents since 2011.

That makes me want to cry!

A few weeks ago I considered writing something on Facebook about how, if you have a neighbor who is elderly or has a physical ailment, you should go help them during the holiday season. Putting up lights or other decorations, scooping snow, running to the store, and yes, even wrapping presents, can be very difficult for someone slowed down by body problems. But let me tell you something about 2018… I didn’t worry at all about the gifts that piled up in Jeremy’s office (hidden from one particular 14 year old), and that was because I knew Rebecca was coming.

This friend is a light to me, and not just on our designated wrapping session every year. She is a breath of fresh air, a beautiful soul, and a joy to watch as she grows and changes. Rebecca, I love you! Thanks for using your strong arms and perfect wrapping skills to bless my family.

December 21