This morning I reached for the glass with the embossed emblem on it and smiled at its origin: Bubba Gump Shrimp Co at Universal Studios. Never has a simple glass—free with a specific meal that night—been so lovingly cared for as this one when we wrapped it in our clothes and hauled it back to Nebraska in our suitcases. It’s classier than it has any right to be, coming from this franchise of shrimp-y deliciousness. I laugh now remembering how Liv declared the restaurant’s shrimp the best in the world, this just a day or two after eating what was truly the best shrimp—fresh and incredible—off the Gulf Coast near Indian Rocks Beach. The seafood there! Oh. my. goodness. It was amazing. I can remember every meal I’ve had near the coast where I ate fresh seafood and I dream about it later (Port Townsend, Dungeness, San Francisco, Panama City Beach, St. Simon’s Island, and yes, the small towns just west of Tampa Bay). Bubba Gump Shrimp Co was—and is—a fun franchise, but it’s not the best. And that’s okay because I hold those memories of Universal Studies close to my heart.

Universal is no slacker when it comes to marketing. The very presence of their ads sent to my inbox illuminates my soul on these cloudy midwestern winter days. I click on the link and open up a page to a new hotel they’re sharing with the world. I read about the amenities and how close this place is to parks and then I flip over to Trip Adviser to see what average joes have to say about their travels. Am I going to Orlando anytime soon? Probably not. But you never know when an opportunity will arise for two 40-something best friends from Nebraska to find themselves on a magical getaway. Do we talk about a moms trip to the Magic Kingdom? About leaving our children behind and experiencing the joy of it on our own? Yes and yes. Ha! 

The trip to Florida that Jeremy, Livia, and I embarked on three years ago still sings in my heart a bit. That Florida sunshine in the middle of February. Did it know that this was the land of my birth? That somehow my soul is infused with its golden rays and the smell of the ocean and the sounds of waves crashing on the beach? Perhaps. We had days and days of new adventures together. Even our airport jaunts—catching our connecting flight to Orlando from the Phoenix airport due to a massive storm that altered our flight route a bit—even that was more fun together. We ate in airport restaurants, taking our time and enjoying the meals because, like a turtle, we had everything we needed right there in that space. No one was left behind. We rented our car in the middle of the night, found our not-so-great motel in the middle of the night, crashed on its two crappy mattresses and slept like the dead in the middle of the night. I moved into Liv’s bed at a random hour, abandoning Jeremy’s side while he tossed and turned, surprising my kid with cuddles the next morning. We stuffed ourselves with what was inexplicably an amazing breakfast at a close-by Denny’s, all of us drinking coffee and feeling the freedom of a new day.

I think of our drive across Florida, at the marvel that anyone could find themselves living in a state so narrow that one could easily enjoy TWO oceans in one day. Who lives like this? Are they aware of the luxury of the sea at their disposal? Jeremy, in the driver’s seat, me with a plugged-in iPhone navigating, and Liv in the back munching on whatever gas station treats we picked up as soon our Denny’s-stuffed tummies allowed. And then the Gulf of Mexico as it appeared in front of us, the splendor of it that brought tears to my eyes. Liv was the first on the beach, and she, the granddaughter of Claudia the Island Girl, took to it as though she was born and raised in such a space. Her eyes never stopped scanning the sand, her hands never quit picking up shells and seaweed, her smile and greetings never failing to engage the older women on their beach walks as they meandered past her. Liv was in her element. 

So many moments of this trip still continue to bring me joy. From the leis in our Orlando hotel as we entered its doors to the water taxi that took us to the amusement park. From the first sighting of Hogwarts (aaaa!) to the flights on broomsticks and motorcycles. From the doors of the Hello Kitty store to the sweet French bakery with the chocolate croissants. From the air-conditioned Tonight Show waiting area (“ew, PUPPIES”) to the odd-yet-entertaining Shrek experience. From the fast passes that allowed us to take the short lines to the service that delivered our souvenirs straight back to our hotel room on property  which felt ridiculously bougie—and I had no problem at all being bougie for two seconds—to meeting King Kong and Spiderman in some wild rides. We had a blast. Our times of fun were not without trouble and discomfort. Our feet ached. That one lunch was nasty. We were pulled aside too many times and there’s that yet-unwritten complaint about how they handle people with disabilities (oh dear goodness was that surprising and exasperating). We learned our kid, so adventurous years before at Disneyland, really doesn’t like rides and we had to work through that. We figured out how to still enjoy rides solo. That early early early morning Uber drive to the airport with the guy and his really interesting music choices—he hadn’t been to bed yet and we were just starting our day, meeting in the middle. That overeager TSA agent who barked at my husband rudely and pissed me off. All that was part of the trip, too. And all of that became memories that our little family could tell, stories that we will re-tell with laughter in coming years. 

We are not a frequently-vacationing family. Two-thirds of us are happily, delightfully, contentedly hobbits and prefer to stay at home. They ENJOY home. I fancy myself a worldly adventurer and yet I, too, when flying away from my comfortable bed and full pantry wonder why I would ever leave. But these times where we’ve gotten away and enjoyed the travels together? They are priceless. And they are enough to still fill my spirit years later on a cloud-laden day in January in quiet Lincoln, Nebraska. 

I don’t have a political dog in the fight right now. The election from November sapped me of any energy I have left for such nonsense. I care but I just don’t care as intensely as I did prior to Biden unseating Trump as the leader of our nation.

I say that I don’t have a dog in the fight because the fight is ongoing in my city and try as I might to understand the perspective of the “other” side, I cannot. 

Daily, I put my head down and do a whole lot of garbage that a whole lot of people don’t have to do. I normally do not complain about it and I also don’t give much thought to the fact that I’m kind of a weirdo in all I have to do to keep my body working smoothly.

So forgive me for a moment while I complain loudly.

Today I’m just all out of grace for those with normal, functioning bodies. (Don’t worry, the grace will come back after I rid myself of the venom.) At the start of Covid I figured that everyone had someone in their lives to be careful about and for… Your grandma is elderly so you’re careful for her. Your aunt had breast cancer last year so you’re careful for her. Your brother has type 2 diabetes so you’re careful for him. Your child has asthma so you’re careful for him.

And then I, gratefully by the way, lived through months of this swirly, confusing, unknown time of Covid-19 sweeping the entire globe and I began to notice that—wait a sec—not everyone is being careful. I have tried to understand the reasons why, but I have yet to really figure it out. Am I asking for a statewide mask mandate? Nope. I think it would be smart, but then again, no dog, remember? Do I think we should lockdown everything and ignore the pain of small businesses? Nope. Absolutely not. Maybe shutting down is the right way to go, but as for me, I’m doing everything in my power to support local business owners. We tip well. We thank them. We patronize their businesses, masked and distanced, happily giving our money to places that might be struggling. We share their names broadly on social media.

No, what I’m annoyed with is how very easy it is for the physically blessed among us to say, “just stay home if you’re not healthy.” I’m over it. 

Just. over. it.

I’m beyond exhausted dealing with the body the good Lord has given me—which functions and dysfunctions in a variety of ways—and then I have this? My neighbors and friends saying that they are fine and they will continue to enjoy their liberties, thankyouverymuch? It’s a giant “screw you” from those who are already doing well and can’t be bothered with the hurting, tired, weak, chronically beleaguered among them.

The truth is that the healthy and young among us can get sick and it’s no thang. Odds are in their favor. Despite the growing death count of Americans, I still gather this feeling of “it hasn’t affected me, so I don’t give a damn.” 

I’m over it. 

What is your life if you really don’t care about others? What are you living for? If your personal liberty is the most important thing in your life I believe you need to take stock of your blessings. If you feel like your thoughts are the wisest and your family is the best, if you can still run and play and all your organs are functioning perfectly, if you have no reason to fear Covid-19, then bully for you.

Your grandma might feel differently about things.

Your neighbor might feel differently about things.

I feel differently about this thing.

I have stupid type 1 diabetes and stupid rheumatoid arthritis and a ridiculously extroverted personality and a little bit of a fighting spirit and a lot of seasonal affective disorder and while I am mentally ready to get past this pandemic already, I have to pay attention.

I cannot hang out with you.

I will not eat in a restaurant.

I will not go to church where people are singing—even masked.

I did not see loved ones for Thanksgiving and will miss them on my birthday.

So whatever you think about politics and viruses and conspiracy theories and small businesses, know that people like me are listening to everything you say and we are tired. 

Have an opinion, sure. But also have some compassion.

---

Edited on 12/7 to add that while I am still worshipping with the saints in my basement each week, singing mightily from home, I am grateful that others can gather together. This is what I feel I need to do to stay healthy. I have no desire to make decisions for everyone else! I want restaurants to thrive. I want people to worship. I want life to go on as best as it possibly can and I recognize that each family has to make their own calls. Besides masking and distancing to keep others healthy, I think there’s a lot of gray room for decision-making. Again, I’m not in a position to decide what’s best for everyone. I’m happily not in charge of such things.

The clock silently slipped past midnight and revealed a new date on my phone as I caught up on social media before falling asleep. November 14, it read, and I felt the time shift from 25 years as a type 1 diabetic to 26. Twenty-six. Twenty-six years ago I was the same age that my daughter is now. Sixteen. Junior year at Southeast High School. I was doing exactly what I wanted to be doing: singing, acting, joining clubs, spending time with friends, taking challenging courses, and plotting an accolades list that would get me into the college of my choosing. At the time I felt like type 1 diabetes destroyed my world. And to be fair, it did for awhile. I traded a week of school just prior to Thanksgiving break for a week at the hospital, learning about syringes and counting carbs and low blood sugar reactions and the way high blood sugars would cause dramatic complications. I cried a lot. I mean, a lot a lot. Diabetes was not on my to-do list. Back in school I felt like a teetering toddler, getting my bearings and figuring out how to live a new life in a body that didn’t really look any different. I could fit in there. But at the many doctor’s appointments and trainings at Children’s Hospital in Omaha, I was a drippy, angry, sad mess of a teenager that had just been given a giant curveball in life.

Over the past 26 years diabetics and non-diabetics alike have asked the question, “What’s good about diabetes?” That question made me rage. NOTHING, I said for many years. And still, I feel that deep in my soul. Diabetes is a mess-up. It’s a stain, a mistake, a tragic fall within the human body where my very own autoimmune system has betrayed me. In that sense, there is nothing good about the whole shebang.

But here I am, 42 years old. A productive member of the community I live in. A wife. A mom. A woman who has loved other people’s children and who strives to love others well. And you know what I see so clearly today? Type 1 diabetes has made me who I am. 

Okay, so let’s not get dramatic about this. I believe God is sovereign over all things and that he knew T1 would be part of my story. Joni Eareckson Tada in her autobiography Joni refers to our lives as masterpiece paintings on a stretched out canvas, only we can see just a little bit of that canvas at a time. My story is a beautiful one. It is a particular one. And so so so very much of who I am today began with a diagnosis of diabetes on Monday, November 14, 1994. Other than my childhood moves across the country for my dad’s work in hospitals, diabetes was THE thing that began shifting me from someone who expected the world to go her way to someone who empathized deeply with others in pain. 

Diabetes changed me.

For so long I was dead set on putting diabetes last on my to-do list. I ran the race of life and pursued my goals. I married my love at a young age and finished college while he worked through grad school. I proudly earned a teaching degree. I continued a life in ministry, in both paid and unpaid positions, and learned about the way the church is uniquely equipped to serve the body and soul as it follows Christ’s leadership. Meanwhile I was inconvenienced almost constantly by diabetes. I didn’t always have money to deal with the unscheduled ways diabetes wreaks havoc on a life. By forgetting to fill prescriptions early I learned that kind pharmacists can be the most blessed people to walk the face of this earth. I learned that normal people activities like walking the hot pavement of an amusement park in the middle of the summer revealed my abnormal need to consume sugar to avoid passing out. I had to eat when I didn’t want to and skip eating when I was super hungry. All par for the course for a diabetic. I had to drop almost $100 on a vial of insulin as a very poor 23 year old after my prescribed bottle got too hot in the cab of our moving van. I missed a ski trip with my youth group girls in order to visit an ER after puking all night, and I very memorably got diagnosed with diabetes ketoacidosis (DKA) after years of putting diabetes in a low position of importance. DKA will kill a person, and that was the closest I’ve come to death in this race so far. It scared the tar out of my young daughter, and though it wasn’t a turning point in my self care, it was the beginning of the curve towards giving diabetes the attention it needed.

As much as I long to ignore diabetes, I cannot. And now T1 is receiving the attention it deserves from me. Others might do woodworking, or be the DM for Dungeons & Dragons. Some might join knitting clubs and others might run marathons. I do diabetes. And I do a host of other things. You would not believe the strength of the T1 diabetes community! These people are warriors and can do any of the activities I mentioned above. But for all of us, diabetes requires a gigantic portion of our brains. The good news is that I am trying to take great care of myself these days and I treat T1 like a hobby. I’ve learned to stop and eat when my body needs to be fed. For years I stopped and fed my babies first, always sticking to their timetables and doing what their little bodies needed, as moms do. But now it’s me time. I change out my infusion sets every few days. I recharge and tape the CGM on my arm every 7 days. I pause to check my glucose at home, in bed, in the aisles of Target, before I drive. And I put juice boxes and fruit snacks on my Walmart shopping list and then gently remind my kid not to drink the last of the apple juices just in case I need them. She’s polished off the Sprites and Diet Sprites for my sick day regimens, so those will go back on the grocery list next week! 

I take care of myself. And by doing this, I’ve learned that all of us human beings are limited creatures. If I had to pick one word for the year I would pick LIMITED. 

Last year my friend Emily and I led a bible study group through Jen Wilkin’s None Like Him and In His Image. One of the biggest take-homes I got from those books is that God is so very other. He is not like us, no… we are like him, in teeny tiny shining ways. I struggle with my limited nature all the time. It’s a way that I want to be God (instead of being content to just try to be like him). I want to be good at ALL THE THINGS. I want to learn ALL THE THINGS. I admire someone and want to be that part of them I admire. I don’t like having limits and boundaries and things that get in my way. I. am. limited.

Diabetes is one of the things that limits me.

But guess what? If I think about it for more than two seconds I know that you have limits too. We all do. We are all born into limited bodies. We all have limited amounts of time to enjoy each day. We have limited skillsets and limited gifts and when it comes to you I embrace that! I love what YOU bring to the table, but I struggle with being content with my own limitations.

All that being said, I’m coming into my own in my early 40’s. I’m glad I have eyes to see how my limits sometimes chafe me, because in seeing this dilemma, I know it won’t rule over me forever. I’m beginning to value and appreciate my boundaries as a human in the way I value and appreciate others. Case in point: being grateful for diabetes. (Yes, even typing that sentence made me throw up in my mouth a little.) I’m not exactly grateful for the brokenness of it, but I’m grateful for how it has shaped me. I love others better because of type 1 diabetes. I can empathize with others’ plights because of diabetes. I can mourn in your hospital room over the baby who never opened his eyes, I can cry on the phone over your diagnosis, I can pray for you in a different way and tend to your lows and highs because I, too, have been there.

The T1 diabetes diagnosis when I was 16 didn’t reroute my life, it set me on course to be who I was meant to be. And for that I am thankful.

Spring has come to Lincoln, Nebraska.

I delivered a breakfast burrito and coffee this morning to Tina for her birthday. I haven’t seen her in months, though we talk from time to time, so seeing her smile today lit up my heart. Through the passenger side window I sang happy birthday and we squeezed hands—followed by some hand cleaner, of course—and that was it. But I know from Livia’s birthday drive-by last week that right now a smile and a gift means a whole lot. I felt sad and happy all at once driving away.

But spring has come. And I almost missed it! I don’t have many reasons to travel far from home and, to be honest, I get a little panicky considering that I may need to use a bathroom when I’m across town and what then? That sounds dumb to the average person who doesn’t mind popping in a store or restaurant, but alas, I’m not average when it comes to my health and I have reasons to be extra careful and thoughtful right now. Today’s drive let the beauty of spring sink into my soul and it. was. delightful. It was cloudy and raining but I could still feel the trees gently growing over Lincoln’s roads, changing an open sky view to one layered in green. A red bud here and there caught my eye, and there are these little round, white globe-like flowers in shrubs every so often that look like small hydrangeas. Getting out felt glorious.

I found myself talking to God on my drive.

I thought of my pregnant friends and prayed for them. I thought of my friends with new little ones and I prayed for them. I considered a friend who is house-hunting and asked God for the right space for her family. I asked for healing for the grieving and provision for our leaders. I asked for wisdom for myself in coming days. It was like a dam had opened and the space between me and God was clear.

Why was God nearer to me when I was behind the wheel of my Nissan Altima? I considered this because it felt confusing.

God is near to me, always. He is the constant, and I am the variable. And boy is life full of variables right now.

I had a rhythm in my pre-coronavirus life—as did we all—and the rhythm was a pretty healthy one. Livia and I would pray for our days and ask for blessings from God on our drives to school. Only recently did I realize that I hadn’t prayed for my husband’s work in weeks and weeks because, well, because I wasn’t driving Liv to school! My mornings used to be filled with meeting with people, going to appointments, checking off to-do lists, or studying in preparation for bible studies or talks. Of course all of that has gone topsy-turvy now and I find myself with very little reason to drive around town, no ability to be around people, and my goals have changed entirely. I have the same amount of time in a day, only now I fill it with assisting my teen in school work and tending to our house.

So while God is near always, I have changed. But on top of that, I have felt lower—emotionally, mentally, spiritually—than I have in a long time, and I believe that’s due to my extroverted personality. This whole corona situation has been a giant struggle bus for me and though I keep posting memes and notes and talking to people, there’s not a lot that makes things better. Each day is hard, some harder than most. Being inside my house, with the same two (beautiful) people, with the walls staring at me all day long, it’s just not a good setup for me. I am now needing to pay more attention to my mental health, in addition to my physical health. If I don’t actually DO something to lighten up my spirit, I might not ever get out of bed.

This morning, a simple drive and goal elevated me. I’ve felt fairly lonely in my extroverted struggles, but there it is: a change of environment and a reason to get out the door did wonders for me. Not only was I encouraged to see the beauty of spring in Lincoln, but I felt God’s sweetness and closeness in a way that has eluded me for weeks.

I am so blessed with a safe home to stay in right now, and I feel grateful that I am not working outside the home at all. My days with Livia and Jeremy are good ones. But they’ve also been very hard. It’s okay to feel both of these truths all at once.

Last week I had a few hellish nights surrounding a much-anticipated trip with my girlfriend. If you hang in there with me for a sec I’m going to swing this conversation back around to the hot take culture we’re experiencing right now, particularly on social media. But the trip… oh the trip! I love to travel. I dream about traveling and I am instantly inspired by looking out a plane window or a car window onto new-to-me surroundings. Give me 75mph on a rural highway in Nebraska or a flight to Florida high above the clouds, the experience alone makes me giddy. I also have this other thing—and it’s a brain problem—and it’s called anxiety. My travel anxiety is further complicated by the very nature of type 1 diabetes, which demands I prepare for all contingencies in order to… well… in order to stay alive. Type 1 is a jerk like that.

So while I was tremendously excited to ditch town for a few days, my brain was freaking out a little. Or a lot really. I rolled over in bed the night before we left home and thought blearily, “Is today the day I get on a plane?” and after that I was wide awake. When you wake up at night and can’t sleep you play all kinds of games to try to either fall asleep or, at the very least, rest your body. It was only 3:00am, so I tried to be cool but I really was getting more amped up as each hour passed. Enter type 1 diabetes and before long my body started burning ketones.

Ketones are chemicals that build up when your body starts to burn fat for energy. Sounds good until you read a bit more and learn that in T1 diabetics a build-up of ketones can lead to Diabetic Ketoacidosis (DKA) which, if left untreated, can lead to a coma or death. I’ve had DKA before and it was tremendously scary. I’ll do anything to avoid it, which is why, when my body started producing ketones—likely due to stress—in the early morning hours before I boarded a plane, I got more stressed. I also started tending to myself. Gone was the carefree and excited feeling of getting to travel, and present was the need to pound liquids, deal with nausea without actually vomiting, dose insulin to flush the ketones, and try to eat a few carbs to give myself something else to burn. This was not my first rodeo. I struggled to eat; my toast tasted like cardboard in my scared, dry mouth. I struggled to drink and ran to a gas station for a sugar-free Powerade. I pounded the sidewalks out front in 19 degree weather in order to get the blood flowing and do something with my energy. All the while I kept checking for ketones (aka peed on a stick), kept pricking my finger for my glucose, and managed to pack up my 9th grader and wish her a good day. Yes, I did feel like throwing up while driving her to school but I was determined to send her off. It’s amazing what a little determination will do. When I got into Maralee’s minivan for the drive to the airport I looked like death. Already really pale, I was a ghostly shade of pale at that point. I caught her up to speed and suggested that if I wasn’t clear of ketones by the time we hit the airport she should drop me at the hospital and go on her way without me. (I’m certain she wasn’t excited about that option, for many reasons.) My protocol for self-treatment worked beautifully, however, and though I was way behind on sleep, I righted the ship and had zero ketones a hour later. We got on the plane, I crashed in a nap, and we landed to start our adventures. This story was essentially repeated two more times over the course of our four nights away. Two more nights of anxiety, illness, and stress. Two more days with hard crashes into morning naps. And yet, we made loads of memories. So really, I won!

I write all this down to say that my body is unique. I have type 1 diabetes and a few other doozies in the autoimmune department, and until Maralee was witness to every little blood sugar and insulin pump and ketone issue for five days straight, I didn’t think about how much energy it takes to simply live. That’s my life with diabetes. It requires nitty-gritty, hands-on babysitting day in, day out.

People in newstories, people in your newsfeed, friends, enemies, whoever… their needs are unique as well. Before you issue your hot take online—and by that I mean your opinion—take a minute and consider, what do I really know about their story? Am I the best person to comment on their needs? If not, how can I say something encouraging and true rather than critical?

Some of you in the midwest may have heard a KETV news story about a little girl in Iowa who fell asleep on a bus recently. The bus driver didn’t walk back to make sure all children were unloaded and the little one’s morning bus ride went from a 30 minute routine to an hour and 10 minutes. She spent an extra 40 minutes riding the bus. That’s not the worst thing for the average kid, but for this child it was a very bad thing. This little one has a rare form of diabetes where she swings from low glucoses to high ones without any warning. I think I read that she can’t take any insulin without dropping dangerously low.

What I witnessed on Facebook was a surprising number of commenters who were angry with the girl’s mother for raising a stink about her daughter being left on the bus. Without reading the article, without listening to the story, they commented and judged her. They assumed this child was an average child without any special needs. And even when the mother—a single mom, as it turned out, with epilepsy and no husband and no family support close by—began to defend herself in the comment section, people were still terribly rude.

Yes, online commenting is notoriously nasty. But it doesn’t have to be. And it’s not just Facebook, it’s everywhere. I cannot stand being on Twitter because I feel like people are just punching each other there. If I guard my Instagram account it’s a relatively nice place to be. But I’m not content with this and I want to talk about it. WE ARE ALL UNIQUE AND YOU DON’T KNOW EVERY STORY.

Even on my diabetes support groups, which are often a really cozy and encouraging space on the internet, I’m finding folks who simply go for the hot take. Instead of perhaps supporting a person’s desire to stockpile some meds or pantry items in case this coronavirus spreads to the US, they are harping on **fellow* diabetics saying this virus is no different from the flu. And yet, they don’t know which T1 also has RA and is on meds which suppress her immune system (raising my hand). Autoimmune issues tend to run in packs, but even if that wasn’t so, which T1s are also on dialysis? Which ones are caring for elderly parents with lung problems? Which ones have survived cancer and have depressed immune systems? I could go on and on.

The truth is, your judgement is hurtful and your judgement is unwelcome.

Before you type, stop for a minute and ask yourself, why am I writing this? How might the original poster interpret my comment? If there’s a chance it could be perceived as hurtful, perhaps I should hold off. And if it’s something that needs to be said, should I take this to a private venue?

I’ve been thinking about that mom in Iowa and I’ve wanted to contact her to share a bit of love. Her life sounds hard. Imagine having epilepsy and then having a medical tricky child who you have to put on a bus each day to get to school. Imagine the fear of wondering if she might drop too low or shoot so high she needs to be hospitalized or worse, dies. Imagine trusting the bus driver to do his job and then he, for whatever reason, messes up. Imagine all the worries of a normal parent and than multiply those by a hundred, or by a thousand.

Honestly, I don’t know what to do about my issues with anxiety and travel. I’ve spent several summers in therapy with different therapists working on the issue and yet, here I am after a particularly bad (yet marvelously wonderful) trip. I survived it, but I’m not going to travel again until I have some more solutions. Therapy, better drugs, whatever; I’m game for whatever works. What I do know is that I’ll keep pressing on towards hope because I truly truly love traveling and I want to see the world. We figure out how to do what we love to do, even when it’s not convenient or simple. All I’m asking for today is a bit more grace, a bit more patience… and a heart and typing fingers that give up the hot take in order to truly see another human behind the screen.

I knew she wasn’t pursuing chemotherapy, but I prayed many times for miraculous healing. Due to my own issues, I was not particularly hopeful, but I asked God for it nonetheless. When her health took a turn for the worse I felt desperate to talk with her face-to-face. I couldn’t stand to ask questions without some nuance to my voice and without being able to look into her eyes. I finally found Karen near the front doors of church and grabbed her before she left the building. I can’t even recall exactly what I asked. It wasn’t, “so you’re going to die?!” But the understanding was the same: she was not pursuing treatment this time. I looked in her eyes and understood we were going to lose her.

I took my cues from Karen, and though I felt despondent over this news, I did not fall apart. She was not falling apart—she was living! The information sat sadly in my soul, however. This spark of a woman—not easily bowled over by life’s problems or problem people—wouldn’t last much longer.

Something strange happens with a terrible cancer diagnosis, a terrible cancer fight, and it’s that you have something of a deadline. Either the one bearing cancer will die or the cancer will die—only one emerges from the battle.

In our small group from church we’ve had two beloved women dealing with cancer at the same time. One was dealt a first-time diagnosis and the other, Karen, was facing it for the third time. We buckled down in our basement on Tuesday nights, never knowing whether the evening would bring tears, great fears, or simply deep sharing as usual. It was hard. There were nights that were difficult with an intensity I’ve rarely felt, nights where we prayed and cried and laid hands on each other and prayed again and carried these cancer fears to the Lord, not knowing what the outcome would be. At times it showed great bravery to even show up. And yet we still laughed downstairs on the comfy basement couches, with candles burning, hot coffee warming our hands. We prayed together. And in the midst of cancer, we rejoiced together too as we witnessed the pregnant, growing bellies of two of our number. New life emerged and we celebrated. Other lives struggled. And one life slowly began to be extinguished.

It was only at the very end that Karen’s great internal light diminished. That woman had one of the toughest, most tenacious spirits I’ve seen. She’s the greeter. The weeder of the garden. The drink maker and server. The one with suggestions and solutions. The one riding her bike to my house far south. The one working even as she grew sicker. The one climbing mountains with zero body fat. The one praying for her girls’ trip with her daughter. The one expressing devotion to her man, after all they’ve come through. She was a fire, burning bright and hot with boldness. And then she was no more.

Back when I finally looked in her eyes for understanding that her death was coming, I wanted to say something to her and never took the chance to do it. I wanted to tell her to wait for me. I wanted to let her know that I’d be coming after her and that I was a little nervous about death and would she wait and watch for me when I arrived in glory? I never asked. Never told her that I felt reassured knowing she’d be there with a smile when I showed up. It seemed silly because I understand the truth, and that is that the comfort of seeing Jesus will quell all anxieties that day. I won’t be nervous anymore. And yet, Karen. Karen will indeed be there, and I look forward to seeing her wink at me—just like the very last interaction I had with her—when I at last set foot in heaven.

Today she is free of cancer, sin, heartache, and tears and she stands in glory. I miss my sister but I will see her again. To God be the glory.

Note: this piece was written the evening of Karen’s memorial service in early November 2019. I sat on it for months before sharing it first with Kevin. I wanted his permission to share these thoughts publicly. I could’ve kept this to myself, but why? For what reason? No, instead I’ll post this as I miss my friend and I’ll enjoy remembering the special person she was. I’ve posted two images that feel so VERY Karen to me. First, she was always taking care of us at church events in a behind-the-scenes manner. You can’t even see her face, and she would’ve been fine with that. In the second shot she’s there, in this special group of women who truly loved one another, and she’s cheering on the bride-to-be. Again, a very Karen thing to do.

I get a little weird every December. A bit itchy. Out of sorts. For sure seasonal depression is a giant contributor to my mood, but it doesn’t entirely explain why I feel like my soul is wearing ill-fitting, scratchy clothes. The month contains two rather large celebrations on the Tredway Family Calendar: my birthday and Jesus’s. And there are so many traditions—which I love—and lights and delicious foods and smells. It’s almost sensory overload, but most of the time I’m down for that kind of fun.

No, the weirdness is connected to the church and to the celebration of the Advent season. We spend a lot of time counting down the days until Jesus is born. Every year, every single year this is our tradition. I finally put my finger on the weirdness of it this year and it’s that we’re all pretending, to a certain degree. We are REMEMBERING something. Something big. Something earth-shattering and life-defining. The world was marked when God became man. Marked with a giant indelible marker, all creation shifted. My discomfort with the month is the same discomfort that kept leading my mind to considering Easter in the middle of the all the red and green plaid and the scent of evergreen. Christians, we live out Christmas and Easter EVERY SINGLE DAY.

The birth of God as a man is celebrated in our spirits every single day.

The death and resurrection of God as a man is celebrated within us every single day.

We are Christmas and Easter celebrants every time our lungs take a deep breath and every time we blink.

Perhaps this explains my December itchies. It all feels a little off to sing with gusto the Advent songs and then quit singing them on December 25, as though that day ends the party. It feels strange to light a candle of waiting, and another of joy, and yet another of peace, when truly, every day we might light a candle with those names as we mediate on who Jesus was and how his birth, death, and resurrection has perfectly covered our sins.

However I feel in December—which really doesn’t matter much—I don’t want to let go of the sweetness of Christmas or the devastation of Good Friday or the utter and complete joy of Resurrection Sunday. All those events are knocking around in my heart daily. Jesus is with me daily through his Spirit. I carry his birth, death, and resurrection in my spirit because, no matter what month is is, I believe that he is the Son of God and that his sacrifice gives me life. Life forever.

Do I think we should ditch a full month of anticipating the Christ child’s birth? Absolutely not. If anything, I’d advocate for Christians to become way better at remembering. We could probably use more traditions, more attention to the historic church calendar, more singing at the top of our lungs and more wrapping gifts to create memories for our children. If Christmas and Easter actually do live within us, life is worth celebrating indeed.

I haven’t stopped looking at your Facebook and Instagram posts. Well, that’s not entirely true. I quit both platforms for almost two weeks and that felt hard. I am a person who is constantly seeking connections. My initial desire was to rid myself of extraneous information in order to live more fully in the 3D world. Instead of trying to get filled up by social media stories, I wanted to seek face-to-face interactions. And instead of creating art with parameters issued by Instagram, I wanted to see if words and pictures would float to the surface of my creative soul once more. I also wanted to move away from the FOMO (fear of missing out) and jealousy I felt when inevitably fun friendships and moments surfaced on your Instagram feeds. Was that too much to ask in a period of five weeks? What did I discover and why did my fasting period last only briefly?

That last question is answered by a broken washer and dryer. When our almost 20 year old washer wasn’t carrying out its duties properly, and then our refurbished dryer smelled like burning materials, we were done. Time for new equipment for our very non-handyman household. I researched and researched, but in the end I wanted to know what my friends and family’s experiences and recommendations were. So I turned to Facebook. As much as I love all of y’all out there, the vast feedback I received wasn’t all that helpful. (I’ll post an explanation on this below.) Breaking my social media fast almost meant I was fully back on board with online interactions as it takes a lot of willpower for me to stay away. BUT. My cousin Mark teased me by asking why I was online when I said I’d be off, and that little nugget of a challenge convinced me to go silent on the platforms again. Only, at that point I started reading whatever I wanted and only interacting on my type 1 diabetes support groups.

In the end, I did learn something incredibly timely about myself: I do not need to save the world.

That’s embarrassing to say out loud because, on one hand, I don’t believe I’m what everyone needs in order to be happy. On the other hand, I believe strongly in cheering on your successes, mourning your griefs, celebrating your birthdays, and rejoicing in your beautiful vacations. I LIKE ALL THAT. No, what I mean is that the sun doesn’t rise and set based on my attendance in your life. I missed more than a month of Facebook birthday celebrations and that was the hardest part of reading-but-not-participating.

My scrolling life, while still in play, changed as well. Without having dropped little comments on your queries for good pediatricians and without engaging in battles over what Christians should and shouldn’t do (on every topic under the sun, which is absolutely exhausting and at times utterly pointless), I wasn’t as invested in Facebook. I actually began to see Facebook as the dumpster fire it largely is. Aside from those moments of knowing a bit more about someone’s actual life, Facebook is a trainwreck.

I tend to be a sponge emotionally. It’s both my superpower and my likely undoing if I’m not mindful of protecting my mind and heart. I care a lot about people, and I’m calling Facebook—and heck, Instagram too, and definitely Twitter (which I backed out of because to me it feels like a punching match all. day. long)—dumpster fires. I’m the kind of empath who will check out everyone else’s posts and pet projects and terrifying new stories and I will soak that stuff up. I will not only weep over the deaths of children I know, but I will start carrying the grief of lost children in around the world. I want to not only fight the injustices of child welfare policies in my city or racial hatred taking place down the street, but I will be tempted to pick up the fight for every other injustice I read about. I’ll be brought to tears by the meals, childcare, lawn mowing and floor scrubbing of my phenomenal church family, but then I’ll also get verklempt by all the other stories friends are posting as well. In short, I’m not built to handle so much. My sponging tendencies mean that the world according to social media is far too much world for me.

When I halted my social media posting, I began to question why I posted certain things. I’ve maintained a blog since 2001; I’m no stranger to sharing my life publicly. The blog served (still serves actually) as a journal for me. It’s my own space on the world wide web where I can write whatever I want and post whatever images I like. There’s a freedom in that. As an extrovert and verbal processor, I could write quips on Facebook daily and I enjoy the interaction with friends. Life is funny and it’s fun to share that stuff! But do I need to? No. If the cost is my emotional wellbeing then it’s a resounding no. (Note: if you’re a dear friend and you’ve wondered why I’ve messaged you so many times in the past month, well, here’s your answer. Verbal processor here!) Also, why am I posting to Instagram? I am absolutely confident that a large percentage of my loved ones post to document their lives. However, if I’m being honest with myself, at times I’m posting to prove my worth:

I’m a good mom. See? We did fun stuff this summer.
I like cool things. See? We ate at this restaurant.
I hang out with really great people. See? We did this. And this. And this.
I have an awesome husband. See? He did this.
I have an awesome kid. See? She did this.

Bragging is not my only reason for posting. There are many times I post something my husband did because I’m incredibly grateful for his kindness, or the beauty of the flowers he picked out for me has stunned me. I like to post events with my daughter so I don’t forget them, and I do like to show the fun travels or adventures I’m having with people I love. That’s all fine! But I’d be lying if I acted like my motivations were pure all the time. And I’d also be lying if I pretended like I wasn’t hurt by the times where I’m not invited to the party or where my kid is not accomplishing what your kid is. I long to not be blown into heart spaces of less confidence or less joy, but there it is: sometimes social media illuminates the gross parts of my soul.

Reducing social media usage is wise. My guess is that it’s wise for all of us to pause and ask ourselves why we’re participating and what we’re giving up in the process. I have a phone in front of my face a lot because I can do a lot on this device. I use it for work—both paid and unpaid, for staying in touch, and for entertainment. But I also misuse it, and it detracts from my family life mostly. I am eager to be necessary and connected, but I find that my Facebook and Instagram usage ends up creating false importance and false connections. I am not going to pretend to have this all figured out—if anything, the waters are more muddied now than ever. For one thing, if I write something on my website and actually do want to share it with the world, how do I do that? Answer: by utilizing social media. I long for work and friendships with lasting meaning though, and I’m more than a little tired of scattering pieces of myself all over these platforms. Where do I dig in? With whom do I invest my heart and my friendship? Where do I expend my emotional energies? And how to I protect my mind, my family, and my time?

Before I write about laundry, I want to express that I’m talking about myself here. If sharing these thoughts compels you to apply a critical eye to your own social media usage, then that’s great. If you’re content with what you’re doing in life, that’s also great. I’m not questioning what you’re doing but I am questioning myself in order to make wiser choices in my days.

*******

Quick post script about washers and dryers. It’s true that older models are likely a lot longer lasting than the items on the market today that have digital components that are more complicated to fix. However, my older machines are dying and it’s no longer cost effective to pour money into them, especially when Jeremy and I are not skilled enough to repair them. I have been reading about Speed Queens for YEARS and they were top on my list until I discovered that the current models on sales floors aren’t so great. Go read about it yourself. You’ll also find that Speed Queens are tough on clothes and since absolutely no one in my house has a job in agriculture or landscaping, we don’t need a bruiser of a machine. Speed Queen devotees, I hear you, but seriously, read up on the models you can buy in stores today and make that call for yourself. I read review after review of machines and we finally pulled the trigger on Electroluxes after asking a multitude of questions at a local store with salespeople that know their stuff. One of the biggest reasons we went with these machines was that the doors were reversible. Our washer hookup is on the right, our dryer vent is on the left, and there was no way I was going to deal with battling doors every time I moved a load of laundry. Bad elbows and no hands means you consider these things. A huge shoutout to my girl Maralee whose advice was of chief importance here. (She also always remembers to protect my elbows in the name of longevity and I love her for it.) Maralee knew I’d need doors in the right places, and she also was emphatic that I get pedestals so the front-loading machines would be at a less back-breaking height. I’m only now beginning to take good care of my body, so Maralee, I love you for thinking this issue through with my needs in mind.

And that, friends, is the conclusion to my washer-dryer decisions. Now if you’ll excuse me, I need to throw some wet laundry into my new snazzy dryer.

I’m lost in the disorientation of summer time. The sun had been high and bright all day until I slipped under my covers to take a nap, and then the sun, too, slipped under its covers and out came a disorienting afternoon thunderstorm. The sun and I are both up and at ‘em once more, but time seems off-kilter. I move, often motivated by a checklist and a strong sense of duty, but in my shapeless afternoon the checklist seems insignificant. The hours slip by unnoticed, a book in my hand, sounds of music and typing coming from my husband’s office down the hall. My daughter, with her allowed once hour of television per day, has somehow expanded the hour and I can’t muster up concern. She’s two flights below me, engrossed in Star Trek Voyager and I don’t mind. Ah, lazy summer days. My body and brain are receiving a rest that was unasked for but embraced nonetheless.

The rest of today follows the pattern I’ve been feeling in the past several months, and I’ve described it as a lull in life, a “selah” from the Psalms if you will. I’m not sure that the word selah is completely understood, but some think it means to pause or to take a break. Like a little breath, if it’s truly a musical notation. I feel like I’m in a stage of life that is a little uptake of breath, a bit of calm, a period of pausing.

What happens when a duty-bound, responsible, checklist-making woman takes a breath?

I don’t know exactly, but here I am.

Will the world fall apart?
Will I miss out on opportunities?
Will I forget something or, and this is far worse, will someone forget me?
Will I be seen as lazy?
Will I forget to be goal-oriented?
Will I be more content?

Yes. I can answer that last one already. This selah is surrounded by space that breathes of contentedness. I have strived for decades to reach particular goals, and I’ve largely been good at it. So what happens if I’m not immediately in pursuit of something? Can I truly sit here and read a book and then get takeout for dinner and the world will keep spinning on its axis?

Yes to that question, too.

I don’t know how long this break will be, this space of breathing in and out and not always achieving. I don’t know its length but I do know it’s content. Right now it’s making dinner without feeling the pressure of an activity coming right after it. It’s hanging out with my animal-loving kid, carting her from pet-sitting to the zoo and back again. It’s talking with her, and talking with my husband, and watching tv shows together, again without any pressure of significant deadlines. It’s reading a book, finishing it, and picking up another one. It’s reading out loud. It’s listening to podcasts. It’s conversations with friends or family over an iced coffee or a last-minute run to Marshalls.

So for now I march to a different drumbeat that doesn’t feel like a beat at all. Bring on the summer sun, and let the days come.

I once worked alongside a woman who was tough. In an office building full of warm and empathetic individuals, she stood out as a person who wasn’t interested in chitchat, didn’t smile very often, and certainly didn’t seem to care if you were the latest student-worker in a long line of uninteresting student workers. She was not, shall we say, nurturing whatsoever and her reputation preceded her.

I was nervous every single time I had to approach her desk and ask her a question. As a person who excelled in the “getting people to like me” category (I could say a few thing about my idolization of likability now), I wasn’t used to interacting with personalities like this one. After I got over my initial surprise at her lack of warmth, I decided something: I was going to work hard to win her over. Putting my own feelings aside was not the norm for me—and still isn’t—but I recognized something in my early 20’s and it was that I was going to have to work on this relationship over time. There was an obstacle—her—and there was a hurdle to get over, and I was determined to conquer this challenge.

In conquering the challenge, I learned a huge lesson in relating to people. Not everyone is a warm fuzzy person! Some people have tough exteriors borne of hard circumstances and others have natural bends towards introversion. Whatever the reason, people are people and will behave differently and that has nothing to do with their motivations, interests, and, hopefully, my relationship with them. This woman became a friend to me during my years of working in this environment, and she is still my best example of powering through what initially felt like a hard situation. I have fond memories of her now.

I confess that I don’t want for my daughter to go through hard times. I want to bubble wrap her, ensuring she has a soft heart towards the world and protecting her from the cruelty I’ve seen. I want to wrap my kindness around her to deflect the unkind words that come in her direction. I want to lay pillows at her feet to protect her from inevitable falls. I want to open her eyes to rainbows and flowers and sunsets without her having to witness the heavy winds and tornados and, yes, the floods. At some level I understand Helicopter Moms. The desire to protect and want the very best for our progeny is strong. With privilege, power, and influence, some of us will stop at nothing to push our children into the future that we think is best, along the route that we think is best, and you better believe we’re going to deflect those hard times we see coming a mile away.

But oh, that’s not the way to go. Not at all.

Even while I was typing about sunshine versus storms, I couldn’t help but notice that sunshine means little unless you’ve been through the longest winter on record and you lost track of warmth and light and were moved to a hopeless place in your heart. Isn’t spring all the more sweet after a hard winter? Each bud on the tree now sings praise to its Maker, and your heart is moved to do the same. Spring isn’t nearly as interesting without the hard crust of snow and layers of salt and the same winter boots pulled on day after day. It is this contrast of lovely versus unlovely that awakens us to the blessings we have.

Our pastor said something in a sermon months ago about hoping that his kids will suffer. Okay okay, it’s so out-of-context here that it’s not fair, and yet, suffering is absolutely part of this human experience. I can tell quite quickly whether a fellow adult has ever suffered based on their compassion and empathy for another suffering human. We don’t mature without have the hard edges rounded off, and oftentimes that rounding happens in the toughest of moments. Every scrape of a knee and fall from a tree leads to a child figuring out her boundaries. The mistakes made in adolescence lead to knowing one’s limits. The stupidity of early adulthood leads to important life lessons.

I can’t be a Helicopter Mom any more than I can sprout wings and fly south when the first snows begin to fly. While everything within me yearns to protect my growing child, I do not believe she is best served by being bubble wrapped and protected from the difficulties of this world. If I remove her from every hard situation—which I physically cannot do—how will she learn her limits? How will she rebound and be bolstered internally when the external world is hard to understand? How will she learn rely on God, who is always present and available to her?

Many kids I know have already been through a lot by the time they hit middle school. I think of those who’ve been adopted—whether in infancy or in later years—and I know they’ve experienced a level of trauma completely unknown by those of us who have been raised by our biological parents. I think of the children I’ve spent time with through the foster care system, and though others may never know of their struggles, I know of the addictions, the lack of parental consistency, the unsafe dwelling places, the abuse and the near-constant neglect may of them have faced by the time they started kindergarten. And kids who aren’t in foster or adoptive homes? Still, life can get hard. The death of a parent, divorce, remarriage, sexual molestation, cross-country moves, bullying at school and home, unkind teachers and coaches, and financial difficulties can all shake up a person from the outside, while from the inside there’s a variety of developmental delays, physical disabilities, and mental illnesses that plague children.

However, the human heart is amazingly resilient. I saw this in the eyes of my students during my student-teaching days and I see it now in my child and in her friends and in my friends’ children. Despite hard things, the human spirit wants to succeed, and it doesn’t want to succeed because a Helicopter Mom removed all difficulties. No! We overcome the difficulties. We make changes. We rebound with encouraging words and encouraging examples and we don’t take for granted the people around us that offer a “You struggle with that? ME TOO!”

So on days (weeks, months, years!) when I feel like protecting my kid, I’ll try to reflect on how much stronger she’s grown in every area that matters in these past 14 years of life. I see her grow in smarts, in empathy, in artistic skills, in relating to animals, and in her faith in a God she can’t see but Who exists and is true and good. I will try to look back at those adorable baby pictures and crazy toddler antics and reflect on the joy she’s brought me and so many others in her world. Perhaps the hardships of this life serve as grit to clean the dirt off of the windows of our souls. May it allow the lights within each of us to shine brighter and brighter as we grow.